About us

Chronic Illness inclusion is a voice for disabled people with energy limiting chronic illness, energy impairment, and chronic pain.

We a Disabled Person’s User-Led Organisation.

 

We are governed by a management committee. Over 75% of the management committee is disabled and living with ELCI, energy impairment or chronic pain. We work with a team of Associates.

To email team members click on the names in bold type below.

Our Team

Founder and Director – Catherine Hale

Co-Chairs – Fran Springfield and Kathy Bole

Secretary – Simon Lydiard

Treasurer – Helen Whitehead

Management Committee Members 

Alison Allam

Victoria Clutton (policy and communications)

Leonora Gunn

Aly Fixter (communications and editorial)

Nathalie Wright

Associates

Stef Benstead (research and policy lead)

Jennifer Brough (communications and editorial)

Josie Isles

Anna Ruddock (research associate)

Patricia de Wolfe

Our Vision, Mission and Values

We’re working towards a world in which our experience of disability is heard, believed and understood, our rights as disabled people are upheld, and our lives have equal value. Read more here


At our Founding General Meeting in July 2021 we presented a report about our activities and work during the previous year.

You can download a copy of that report by clicking on the image below.